Sunday, June 29, 2008
Tuesday, May 27, 2008
Thursday, May 22, 2008
Tuesday, May 20, 2008
Sunday, May 18, 2008
Wednesday, April 30, 2008
Monday, April 28, 2008
Keara is taking some back steps lately. She has become obsessed with going to the bathroom. UGH She has decided that her brain controls her and she cannot ignore the feeling of having to pee. I have tried every approach out there. So we are calling the Dr. today to try and figure out what to do next. It just sux because I know it is *real* to her but we cannot keep doing the bedtime thing. Then I have to use the *special* meds to control it and of course, this morning was bad. She has a blister and that just compounds the problem. You know, if I had all the money in the world, the very first thing I would pay for would be a para-pro for Keara. I just don't have the money and as of yet, the school issue is not solved. Poor Kai, he tries to just ignore it but I know it's affecting him. He is getting more and more disruptive at home for attention. It is almost impossible to explain to him that we are not trying to be unfair to him and that Keara requires the rewards, attention etc. He is just too young to understand. Hell, I might be too old to understand. UGH Then I have to talk Drig out of his obsession of either being first to bed or third...don't even get me started. OCD sux. I wish that I was more patient and could say I understand their need to have things just so, but I just don't. I am not like that and I just try to do what I need to do to help. But with Keara, I am never right. I am evil and unwilling to do what she needs. I just wish I could be the mom she needs instead of the one she really despises. UGH.
So, I am venting and of course questioning. This really sux!
Saturday, April 26, 2008
Tuesday, April 22, 2008
Monday, April 21, 2008
Saturday, April 19, 2008
Let's see.... the break down of my last couple of weeks. I have painted the entire house (minus the kitchen, but that will be coming), we even did the ceilings this time....WOW they POP!! I had my mom here for a visit, that was a whirlwind. We had so much to do, we really did not stop while she was here. I had a birthday shhhh. We had a teacher appreciation breakfast that I organized. It went ok, not as great as I had hoped but oh well. (the teachers went out and cleaned the stuff up before I could get back, I felt really bad). We had Keara's IEP meeting and that was the best it has ever gone....I LOVE her teacher, the new principal and speech teacher. They are awesome. Keara has her Horse Show today. She said "mama, I might even jump, might mama. Just might!" (it's just a step up thing LOL) Oh did I tell ya that I might just be allergic to hay. Like truly allergic. I always feel awful after we leave and my throat starts to swell. I have been taking Benadryl after but that sux. I need to go to the dr. but I haven't had the time and now her session is ending. If she does it again, I will go. And we got her into the Autism Clinic again, so stoked about it!
More later, gotta go to the farm....
Wednesday, April 02, 2008
more later....gotta do some laundry
Sunday, March 23, 2008
Friday, March 21, 2008
Us - "Buddy, how many letters are in the alphabet? You can count if you want."
Kai - "27!"
Us - "Um okay, count it out loud for us."
Kai - "A-1, B-2 .....X-24, Y-25, AND-26, Z-27!"
This is exactly how the girl on BB did it. So I guess there are two out there. I had never heard anyone do that before and I just couldn't believe it but I guess it's pretty common?? Or should I worry about Kai?? LMAO
Tuesday, March 18, 2008
Tuesday, March 11, 2008
But Keara has gotten sick. She started Sat. night with fever and stomach ache. It has been getting progressively worse. So today I made an appointment. It was no more than 15 minutes later and she gets sick. Umm, we have a problem because it looks like coffee grounds. (Has anyone else heard that this was NOT good, as I?) So I called back and yeah, they need to see her ASAP. So we go in and yes I brought the lovely vomit with me (well duh, I wasn't gonna let him think I just imagined it) He looked at it and immediately started testing her for Appendicitis. Like jump up and down and pressing in certain areas and all that. (BTW this post is gonna be hazy because I am literally typing blindly...I am so tired) So he sends us to the hospital. UGH Have you ever done a CT scan on an autistic kid??? It SUX. First she has to drink this contrast drink. They put it into lemonade so she was sssllllooooowwlly sipping it. Then this stupid MoFo receptionist comes over and says "they should not make her drink that, last week they gave a little girl yogurt instead." UM Thanks A Fucking Lot Bitch! Because now Keara refuses the drink and will only do yogurt. Well no one in the back (ie the people that know what they are doing) know anything about the gd yogurt. In the meantime, Keara is FIXATED on the GD YOGURT> "When are they bringing the yogurt Mama? They said I could have yogurt. Are they lying. I want to talk to Josh, he said he would get me yogurt." This went on for ...I kid you not... 2 hours! So they take us to the holding area and give Keara a bed. The we get the trauma of putting in her IV. OMG at this point I am just so ready to just knock her the hell out and do something. But I find out the only alternative to the drink is through another hole and it ain't gonna be pretty! So we finally get the CT done (and yeah there was more drama but I just cannot type it right now). Guess what she doesn't have?? HAHA The fucking joke was on me. We spent 5 hours in the hospital today and we don't know anything. So tomorrow we call and see where to go from here. GAWD, I am praying that my sweet baby girl feels better tomorrow because I know her mommy cannot do another today! I will let ya know!
Sunday, March 02, 2008
I am happy to report that today my little girl was back. She had an awesome day and we talked a good bit about how bad she felt last night. She is such a sweet girl when her brain is letting her. I am starting to feel better too. I went to the Dr. on Thurs. night because it was bad. I ended up leaving with a "potent" antibiotic, some decongestant/allergy pill and the beloved Endal (for those of you that have ever suffered a cough at night, Endal kicks some ASS). I have had a numb head from the meds but at least I am sleeping and feeling somewhat human. Monday night might be FUN. We are supposed to have powerful storms and I hate storms. Hopefully Keara will be ok through this! Wish me luck!
We were outside playing and I heard Kai start to scream. At first it wasn't really a scary type scream so I just figured he was playing or not hurt bad. Then it turned into that terrifying type. I ran over to see what the boy had done this time and he was hanging from a tree. He was stuck between two large limbs...like his knee was in between and wedged down deep. So I tried to pull up on him, which only led to more screaming. I propped my leg under him (not very easy for someone that doesn't work out an a regular basis because my leg was actually about three feet off the ground). Then I tried to get Keara to push on the other side to help shimmy him out. None of this worked. So, I called Jay. He didn't answer. UGH I called again and he headed to the house. Kai was getting increasingly upset so I asked Keara to calmly walk next door and see if they could come help. Finally someone came and she says "oh honey don't worry, I have 3 boys!" She was cool and collected (she isn't the neighbor, just taking care of their house). She was also fairly large (as in strong) and simply pulled the tree apart. I couldn't have done it and was very grateful that she saved us! Jay got home and was somewhat incredulous but whatever. Kai has some bruising and we applied ice. I bet he won't do that again, then again we are talking about Kai!
But wait the day got better...more in a few!
Wednesday, February 27, 2008
DON'T BOTHER SLAMMING ME FOR WHAT IS MY OPINION...I HAVE THAT RIGHT...I WILL IGNORE YOU (see post below, Jay will help me LOL)
Tuesday, February 26, 2008
Last week Kai did start a small fire. He is going to the fire department to have a talk about fire safety and such. Seriously, if there is a line to cross, Kai will do it. He is ALWAYS looking for the next crazy stunt or some reason to do something wrong! UGH
Saturday, February 23, 2008
Friday, February 22, 2008
He found a stick and is *fishing* with it. He throws it out and gently reels it back in. Sometimes he gets a snag, sometimes it's a HUGE fish that ultimately *gets away* or sometimes he actually catches the prized fish. He takes it off the line and decides *hmmm should I keep it or throw it back*. It is the most hilarious thing you have ever seen. And he does it for about an hour. Imusttapethatforalltoseesoon!
Keara struggles with the everyday tasks that seem so mundane for most of us. She cannot yet bath, brush teeth/hair or zip up ALL by herself. Now we are getting there but these are the things that most of us take for granted. I know even with Kai, I tend to just expect him to do these things. He can and it isn't a chore. Keara is trying and one day it will happen but it doesn't consistently yet. It is hard for her to write because she isn't thinking about just what to write but also how to form the letters. Last night we did some cursive in shaving cream and the joy on her face as she accomplished each letter was so wonderful. But she struggles. Math is another area. She can do really complex problems but the little 2-1 still requires 30 seconds of thinking. She also has a weird aversion to the number six. I don't know. I just know that everything I do so easily I now think, wow if I actually had to THINK my way through that process, it would royally SUCK. Like as I am here typing, I am not thinking of how to spell the words, or how to type them, I am just spitting it out. I am thinking more of what I am saying than how I am saying it, does that make sense? It isn't difficult to do that, but for Keara it is pure torture. Just makes me sad.
Her equine therapy started. They just did some getting to know ya type things and grooming. But Keara loved it. I on the other hand, might be in trouble. I will find out next week. I think I may have an allergy, which would really bite. I don't know for sure because I also got what I think is the flu that day. BTW I didn't have the flu a week and a half ago like I thought, this is definitely worse! It really is nasty! Oh and on another front (I'm starting to think I have ADHD LOL) Keara has decided to do her own little fundraiser for her horse farm. She wants to help them. I was so proud of her, to come up with it. Now we have to think of what we can do to raise the money. Any ideas for her??
Off to take more medicine and get the kids from school.
Wednesday, February 20, 2008
So I guess I am a PARTY GIRL.
Monday, February 18, 2008
Now Keara was another story altogether. UGH EVERY time we go anywhere, we have to have that night to adjust because GAWD we changed the routine. So we did the first night ritual and I thought OK it's over. NAH Poor Jay who became the DD because his lovely wife was PLASTERED and his inlaws were PLASTERED...he had to talk Keara through a rage until 3am. But....HE DID IT! I am so excited that he was so calm and able to do it. It was good because I COULD NOT DO IT.
Tomorrow, Keara starts her equine therapy. I am so beyond thrilled. I will report later.
Sunday, February 10, 2008
But that is not the end to my craftiness...oh no I must continue because I am also still to get done
- a plaque that I have already painted but need to do stenciling and then add the picture I may or may not decoupage or just clear coat
- party favors for my parent's anniversary party next weekend
- picture boards for party
- pictures in frames for party
- slide show that I somehow said "oh yeah, totally not a big deal, I'll do it"
- rice crispy (and I do not know how to spell that) cards for V-day
And somehow during all that, I need to pack and OH YEAH...STOP FEELING LIKE A BUS RAN OVER ME! I think I may have the freaking flu in the midst of all this!! So that is my vent post for the day!!